Wednesday, May 29, 2013

Near Death Experience Fuels Quest for Immortality: An Artist's Story

To live or to die, that is the question.

In 1979 at age 19, while living and working as a freelance artist in Toronto my health was dramatically imperiled by End-Stage Renal Failure. If the term 'End-Stage' sounds ominous, it's because it was

Without emergency medical intervention I would've been a dead man. The toxins had accumulated to such  lethal levels that the team of ER doctors  were shocked that I had even managed to make it into Sunnybrooke Hospital on my own two feet. 


Depiction in pencil of the 'Shribner Shunt' to initiate emergency dialysis. (10:48 am, April 4th, 1979) 
After my timely diagnosis I was outfitted with a 'Shribner Shunt' that allowed emergency dialysis therapy the very next morning. Once I had received the dialysis therapy for about five months I started to feel more human and less like a walking toxic waste dump. Kidney failure is an extremely precarious state of being!


My neighbor on the dialysis ward with my machine in the foreground, April 1979.

Making the best of a crappy situation.

A wonderful resource person at the hospital arranged for me to take over an empty room in the hospital as a make-shift studio and even supplied me with a budget in order to outfit myself with paints and canvas to enable me to start painting again as a way of getting back on my feet to regain a sense of normalcy in my shattered life. 

I decided to create a mural that I called 'Recovery I' as a salutation to what I hoped would be an eventual return to health. You might say that this mural was an 'invocation' for my own recovery from what was a shockingly horrific disease.  As a small token of appreciation for the excellent medical care and life-saving intervention I received at Sunnybrooke, I decided to donate this mural to the institution.  It hangs in the main lobby there to this day.

"Recovery I" was designed and painted as an invocation for my own eventual recovery from the ravages of End-Stage Renal Failure.
Extreme adversity leads to a life-long commitment...


Although the onslaught and aftermath of this disease was a huge setback that caused a lot of negative impacts in my life, I can now in retrospect say that the net benefits of the whole experience far outweigh the deleterious. Although I certainly would not recommend this trial by fire to anyone, for me the experience set me on a path to self-discovery though my path as a life-long artist that I would never regret. 

Sure, there have been times when I almost wished I had settled for a more financially secure career but all in all, it has been a great ride and just keeps getting better!

Inspiration or Delusion? Let History Decide.

Very soon after my eventual kidney transplant...which freed me from the exhausting routine of thrice-weekly dialysis treatments...I was a recipient of another kind: a powerful vision came to me in a vivid 'waking dream' of three triangles hovering in space. They contorted and rotated to join together to form a single design of three triangles 'within' a single triangle. Lest I sound like a total nut-job in describing this as a 'mystical experience' I will share with you the exciting development of the following days.

With the confidence of one 'inspired', I took my crude pencil sketch of my three triangles to the Archbishop of Halifax at the time, professing to him that I believed it to be a 'mystical vision' that encapsulated the mystery of the 'Trinity', which in Roman Catholic terms is the 'Father, Son and Holy Spirit'.

Much to my delight and amazement (but really, not a huge shock or surprise; I was THAT confident) the Archbishop made an executive decision on the spot and assigned the parish priest to oversee the execution of a mural in St. Mary's Basilica which I proceeded to work on with vigor!


Applying the first few strokes on 'Trinity AD 1981' at St. Mary's Basilica in Halifax.

After about three months I had completed the mural which I called "Trinity AD 1981" in the modest setting of the Parish Hall of the Basilica. My dream at the time was to someday be commissioned to design and paint a much larger and grander mural in the Sanctuary of a sacred space. Alas, this was not to be...until exactly 30 years later!

The finished mural 'Trinity AD 1981' in its humble setting at the parish hall of St. Mary's Basilica.
Although the mural was a fairly modest size and scope, it generated a lot of notoriety in the local media. I think the main reason for this was the audacity of an 'outsider' taking his unlovely pencil sketch into the hallowed offices of the Archbishop with the confidence that it would be honored by a designate wall on which to flesh it out to a full-blown mural. Take that!


My mother Shirley Gaudet stands with the Archbishop James Hayes and myself on the occasion of the unveiling.
Success ALWAYS leads to more success!

In my experience, one success ALWAYS leads to more success and this was a good test for that theory. Soon after the completion and unveiling of this early mural, I was recruited as a 'liturgical design apprentice' to the eminent Interior Decorator and Architect the (late) Reverend Father Toby McIvern with the Montreal design firm Desmarais and Robitaille Inc. where I worked for two very formative years. 

Indeed, Fr. Toby's glowing letter of endorsement was key to my much later commission of 2011/12  to design and paint a huge, ambitious mural in the coveted 'sanctuary' of Sacred Heart Chaldean Catholic Church in Saskatoon. 

(The late) Reverend Father Toby McIvern posed for a quick pencil sketch on 11/05/85. The decorative 'doodles' in the background were rescued out of the wastepaper basket as Toby tossed them out after a chat on the phone.
I have chosen these particular artworks to drive home the point that artistic vision and 'inspiration' remain potent and powerful forces even in today's world; they are not outmoded artifacts of a bye-gone era. 


Working high up on the scaffold on the upper right-hand side of 'March of Trinity' aka 'Trinity 2011'.
Imagine my state of mind working on the ambitious mural that covered the entire sanctuary wall of Sacred Heart Chaldean Catholic Church fully 30 years after the humble 'Trinity AD 1981'. Words like 'ecstasy' and 'euphoria' come to mind...if only things were that simple.




If you want to take a closer look at the work-in-progress of this 2011 mural, check this video which pans across the entire surface and proffers some intimate views obtainable only by high-definition zoom lens, as the artwork soars to a height of almost fifty feet at the apex.


30 years after the creation of 'Trinity AD 1981' in Halifax I was honored to stand with His Excellency Roman Catholic Bishop of Saskatoon Donald Bolan and Father Sabah, parish priest of Sacred Heart Chaldean Catholic Church in Saskatoon, SK. on  03/03/2012, the day of  the official unveiling ceremony of 'March of Trinity' aka 'Trinity 2011'.

Not wanting to be typecast in any way shape or form as a 'religious' artist, I have created a prodigious number of murals across Canada over the past 30 years in the secular realm. Here is a selected mural portfolio with The Urban Wall in Saskatoon to give you an idea.


In case you were wondering, I remain to this day a successful kidney transplant thanks to the 'Gift of Life' from my loving brother Steven. He is doing well after 33 years too! One of my long-term goals is to be recognized as the World's Longest Surviving Kidney Transplant Recipient and at over 33 years I am definitely in the running. Just sayin'.


Michael Gaudet is a professional artistmural-paintergallery owner and art instructor. Of the more than 60 large murals he has designed and painted across Canada over the past 30 years, the most prestigious is ‘March of Trinity’ at Sacred Heart Chaldean Catholic Church in Saskatoon, SK. This mural soars to almost fifty feet in height at the apex and covers the entire sanctuary wall of the church.  His current mural project ‘forever YOUNG’ (20′ x 80′) will be permanently erected in its own dedicated park in the summer of 2013.

Wednesday, May 22, 2013

Friday, May 17, 2013

Can the un-insured get kidney transplants? YES!

Refute to article

English: Centers for Medicare and Medicaid Ser...
English: Centers for Medicare and Medicaid Services – Medicare & You 2010, official government handbook. (Photo credit: Wikipedia)

While the Ethics of Organ Transplants article on About.com may be interesting, it does have one (at least) glaringly false statement! I’ve never been a big fan of the site anyway. And, really? I have to register with it to comment on Austin Cline’s article? C’mon. And I’m not giving out my email address just to correct some guy whose focus is on atheism and agnosticism anyway (ie; he doesn’t really care about organ donation).
Since I cannot comment (the easy way!), I will address it here. After all, some of you might have the same argument, or might have heard the same issue, and I want you to know that Cline’s argument is JUST NOT TRUE. He claims that, Overall, transplants are a procedure for people with lots of money or lots of insurance.
Listen to me carefully, especially if you or someone you know is need of a transplant: these procedures are NOT just for people with lots of money or lots of insurance. Not at all. My first transplant was covered by my dad’s insurance, yes.  I don’t know if he had good insurance. I know they made us jump through hoops to get it and to do the follow-up visits and I will never personally carry that particular one.
My 2nd one was covered by a combination of my husband’s insurance, Medicare, and the hospital’s kidney foundation/thing-a-ma-jigger/deal. No, I am not of retirement age and that was not a typo – Medicare actually has special clauses for various extenuating circumstances. ERSD is one of them. My 3rd transplant was covered by Medicare, the hospital’s kidney foundation thingy and outside funding/granting agencies due to extenuating circumstances.
Poor people CAN and DO have transplants, all the time. Ask a social worker or a member of your transplant team or your doctor for guidance. They are your first resource and can help!

Thursday, May 16, 2013

RESOURCES FOR CHILDREN & ADULTS REGARDING TRANSPLANTATION

The following is a (by far incomplete!) list of some of the vast amount of materials available for both children and adults who may be facing transplantation of various organs.

There are childrens' books written by the children who have experienced transplantation, or witnessed a loved one going through it. Juvenile. Comics. Humor. There are resource manuals for adults. Numerous website. Fiction and non-fiction.

I have categorized it in an attempt to simplify your search.

Best wishes.

HELPFUL BOOKS, JOURNALS, WEBSITES
BOOKS
Children’s
  • Pennies, Nickels and Dimes, Elizabeth Murphy-Melas, Anthony Pouncey
  • Precious Gifts: Katie Coolican’s Story, Barklay and Eve Explain Organ Donation, Karen L. Carney
  • Now Caitlin Can: A donated organ helps a child get well, Ramona Wood
  • Dorien’s New Liver, Beatrix Kinderkliniek
  • Lizzie Gets a New Liver, Lizzy Ribal, Beth Basham, Patricia Ritter McCracken
English: The restored scene from Dr Barnard's ...
English: The restored scene from Dr Barnard’s first human heart transplantation – world’s most famous heart of young donor Denise Duval just died…. (Photo credit: Wikipedia)
Juvenile
  • There’s a Little Bit of Me in Jamey, Diana M. Amadeo
Young Adult
  • Pig-Heart Boy, Malorie Blackman (shortlisted for Carnegie Medal)
  • Stealing Kevin’s Heart, M. Scott Carter
  • The Bower Bird, Ann Kelley
  • She Died Too Young (One Last Wish), Lurlene McDaniel
  • Heart Transplant, Andrew Vachss (Bullies) (featured in PW)
  • Organ Transplants: A Survival Guide for the Entire Family, Tina P Schwartz
Autobiographies/Biographies/Memoirs
Other NF
Journals
 
Websites
http://organdonor.gov/materialsresources/materialsntlevents.html
http://www.ncbi.nlm.nih.gov/pubmed/23274332
http://livingdonorsarepeopletoo.com/
http://organdonor.gov/about/data.html
http://donatelife.net/understanding-donation/
http://www.rsnhope.org/
http://www.classkids.org/just-for-kids.html

Is Avoiding Kidney Transplantation Possible?

Yes, even chronic kidney disease (CKD) can go into remission, or be reversed, according to some personal stories I have come across here and there, if caught early enough. Based on those stories (and I cannot back them up or verify them), I want to share something with you, my faithful readers.

According to the article below, you should get your kidney health checked every YEAR. And by ‘you’ I mean the average Joe, not people like me, with CKD, or chronic kidney disease.

Kidney disease creeps up on you like a spider quietly coming down its web from above. This disease is scarier, though, because it attacks from the inside where you can’t see it coming. So you must do your part to try to look for the tiny hints that might appear – if you are lucky enough to have any hints – and to do your part to try to stay healthy despite the environmental, biological, physical, psychological and emotional hazards we face daily.

Read on to discover what types of supplements can help, and if I remember correctly, what may hinder (keeping the article to refer back to for future reference!). I have some excerpts below, for you, but for detailed information, please take some time to peruse the entire article. It mentions CoQ10 and others you may have heard of before.

*Keep in mind that if you already have CKD check with your doctor before even considering taking any of these supplements!!*

Thank you to Carl Bullen from the Kidney Transplant Donors and Recipients Facebook page for sharing this with us!


Innovative Strategies to Combat Kidney Disease

Key points in the article:
What You Need to Know: Strategies to Combat Kidney Disease
  • It is imperative that aging individuals receive regular blood tests to monitor kidney health. In addition to standard creatinine, albumin, and BUN/creatinine ratio testing, cystatin-C levels should also be measured, as this constitutes a far more accurate biomarker of renal function.
  • The high-pressure and toxin-rich environment involved in renal function renders these delicate, highly complex organs especially vulnerable to damage, dysfunction, and disease.
  • High blood pressure, elevated blood sugar¸ NSAIDs, certain medications, and high-protein diets are the most common threats to kidney health.
  • Nutrients such as pyridoxal-5-phosphate (P5P) fight AGEs and ALEs.
  • CoQ10, silymarin, resveratrol, and lipoic acid are also clinically supported, potent interventions.
  • Omega-3 fatty acids help quell inflammation, contributing to enhanced kidney health.
  • A host of additional nutrients complement these actions, including folic acid (folate) and vitamins C and E.
Understanding Kidney Disease
The kidney ranks among the most complex and delicately evolved of all the major organs, making it particularly vulnerable to damage and dysfunction. As the body’s primary filtration system, it must “process” roughly 200 quarts of blood per day, rendering about 2 quarts of waste products and water.29

The fundamental structural unit of the kidney is the nephron. These high-pressure filtering mechanisms govern the removal of waste products and toxins, control blood pressure and volume, and regulate levels of electrolytes and metabolites in the blood. A healthy kidney contains approximately 800,000 to 1 million nephrons.
Housed within each nephron is a front-line filtration element called the glomerulus, a miniscule capillary coil. (The two together resemble an incandescent light bulb containing a convoluted filament.) The endothelial cells of the glomerulic capillaries act as the direct physical exchange between the kidney and the bloodstream. Waste products and water are combined to form urine, while blood cells and protein remain in the circulatory system.
The kidney’s tight control of water and mineral flow, and its role in maintaining healthy blood pressure and mineral balance, rely on the optimal functioning of nephrons and glomeruli. For this reason, one of the primary markers of kidney function is the glomerular filtration rate (GFR), a measure of the volume of fluid the kidney is able to process at any given time.
The glomerular filtration rate; plasma concentrations of the waste substances creatinine, urea, and nitrogen (blood urea nitrogen or BUN); and levels of protein in the blood and urine are the most commonly used measures to determine the presence of CKD. Rapidly rising creatinine usually signals imminent kidney failure. There should be no protein in the urine if your kidneys are functioning optimally.
It should be noted that BUN and creatinine may not increase above the normal range until 60% of total kidney function is lost. This is why certain aging individuals should ask their doctors to test for cystatin-C in the blood. Cystatin-C is a protein produced by virtually all cells and tissues in the body. Because it is formed freely and at a near-constant rate—as opposed to albumin, which may fluctuate with dietary protein intake—plasma cystatin-C serves as a more accurate biomarker of renal function.30
CKD may be categorized in one of 5 stages. Stage 1, the mildest, is defined only by the persistent presence of protein in urine (GFR may be normal); in each successively higher stage, GFR declines, until Stage 5 is reached, defining end-stage renal disease (ESRD), or kidney failure.31 ESRD is irreversible and results in death without dialysis or kidney transplant.32
Risks to Kidney Health
Given the toxic, high-pressure conditions involved in renal function and the delicacy of the kidney’s structural components, it comes as no surprise that an array of near-constant internal and external insults may take a severe toll on the glomeruli and other parts of the kidney. Their incremental damage and destruction leads to the progressive decline in renal function seen in aging humans.
These internal and external insults include:
  • Hypertension. Over time, chronic high blood pressure inflicts damage to the endothelial cells lining the kidney’s blood vessels, including those within the glomeruli. The result is a familiar cascade of events that leads to the thickening of blood vessel walls and reduction in blood flow seen in atherosclerosis. Reduced blood flow is in turn directly translated into lower GFR. Pressure damage to the glomeruli also diminishes their filtration capacity, permitting large protein molecules such as albumin to pass into urine instead of remaining in circulation. (This is why urine albumin levels are used to detect kidney disease.)
  • Elevated serum glucose. Diabetes is now the leading cause of CKD.61 Experts predict even greater increases in CKD if rates of diabetes incidence continue to rise steeply.62 It should be noted, however, that high blood sugar poses a threat to kidney health even in non-diabetic individuals. Chronic exposure to glucose degrades and destroys kidney cells through the formation of advanced glycation end products (AGEs)—molecules generated through the pathologic binding of glucose to proteins in the body. AGEs cause primary structural proteins in the cells to cross-link and become non-functional, increasing oxidative stress, inflammation, and directly damaging kidney tissue.63-66 It has been established that even early-stage insulin resistance is associated with CKD.67
  • Excess fatty tissue. Body fat contributes to the development of CKD through production of inflammatory cytokines specific to adipose (fatty) tissue called adipokines. Along with AGEs and oxidative stress, adipokines exacerbate the inflammation commonly found in people with CKD.67 For this reason, metabolic syndrome—co-occurring insulin resistance, hypertension, and abdominal obesity—represents a perfect storm for the development of CKD. A 2007 study found that metabolic syndrome occurs in 30.5% of individuals with stage 4 or stage 5 chronic kidney disease.68 Metabolic syndrome increases the risk of chronic kidney disease, even before diabetes manifests.69
  • Protein over-consumption. Ingesting an excessive amount of protein, particularly meat, may tax the kidneys to the point of distress. The extraordinary increase in individuals adhering misguidedly to high-protein diets in order to lose weight has had the unintended consequence of boosting rates of kidney damage and disease. Meat consumption also results in high AGE production and the consequent inflammatory injury to kidney tissue.69 A prudent approach to dietary protein is thus encouraged by most experts, particularly in people who already have some degree of CKD.
  • Drugs. The nephrotoxic side effects of many commonly used medications comprise another significant causative factor in CKD. Chief among the mechanisms by which drugs cause kidney damage are oxidative stress and adverse alterations in cellular energy management. So-called “analgesic nephropathy” involves destruction of the active regions of the kidney by overuse of pain relievers, usually used in combinations of two or more, including the common over-the-counter medication acetaminophen (Tylenol®) as well as non-steroidal anti-inflammatory medications (NSAIDs) including high-dose aspirin, and ibuprofen (Advil®, Motrin®).70-73 Chemotherapy agents have also been shown to significantly impair renal function.74,75 Please note that acetaminophen inflicts kidney damage via a different mechanism than pain relieving drugs like ibuprofen.