RESOURCES FOR CHILDREN & ADULTS REGARDING TRANSPLANTATION

The following is a (by far incomplete!) list of some of the vast amount of materials available for both children and adults who may be facing transplantation of various organs.

There are childrens' books written by the children who have experienced transplantation, or witnessed a loved one going through it. Juvenile. Comics. Humor. There are resource manuals for adults. Numerous website. Fiction and non-fiction.

I have categorized it in an attempt to simplify your search.

Best wishes.

HELPFUL BOOKS, JOURNALS, WEBSITES

BOOKS

Children’s

• Pennies, Nickels and Dimes, Elizabeth Murphy-Melas, Anthony Pouncey

• Precious Gifts: Katie Coolican’s Story, Barklay and Eve Explain Organ Donation, Karen L. Carney

• Now Caitlin Can: A donated organ helps a child get well, Ramona Wood

• Dorien’s New Liver, Beatrix Kinderkliniek

• Lizzie Gets a New Liver, Lizzy Ribal, Beth Basham, Patricia Ritter McCracken

English: The restored scene from Dr Barnard’s first human heart transplantation – world’s most famous heart of young donor Denise Duval just died…. (Photo credit: Wikipedia)

Juvenile

• There’s a Little Bit of Me in Jamey, Diana M. Amadeo

Young Adult

• Pig-Heart Boy, Malorie Blackman (shortlisted for Carnegie Medal)

• Stealing Kevin’s Heart, M. Scott Carter

• The Bower Bird, Ann Kelley

• She Died Too Young (One Last Wish), Lurlene McDaniel

• Heart Transplant, Andrew Vachss (Bullies) (featured in PW)

• Organ Transplants: A Survival Guide for the Entire Family, Tina P Schwartz

Autobiographies/Biographies/Memoirs

• Gary Coleman, Medical Miracle, Bill Davidson

• Baby James: A Legacy of Love and Family Courage, Thos Kent Miller

• To the Edge and Back: My Story from Organ Transplant Survivor to Olympic Snowboarder, Chris Klug, Steven J. Jackson

• A Transplant for Katy, Luis Fabregas

• Christiaan Barnard: One Life, Christiaan Barnard, Curtis Bill Pepper

• Or You Can Let Him Go by Kathryn Seidick (featured in NYTimes, endorsed by Nora Roberts)

• Chronically Happy: Joyful Living in Spite of Chronic Illness by Lori Hartwell

• Larry’s Kidney: Being the True Story of How I Found Myself in China with My Black Sheep Cousin and His Mail-Order Bride, Skirting the Law to Get Him a Transplant–and Save His Life , Daniel Asa Rose

• Face to Face: My Quest to Perform the First Full Face Transplant by Maria Z. Siemionow

• Every Second Counts: The Race to Transplant the First Human Heart
  by Donald McRae

• Heart of Iron: My Journey from Transplant Patient to Ironman Triathlete
  by Kyle Garlett

Other NF

• Transplant: From Myth to Reality, Nicholas L. Tilney

• A History of Organ Transplantation: Ancient Legends to Modern Practice, David Hamilton

• Artificial Organs (New Techniques in Surgery Series) by Nadey S. Hakim NF

• On the List: Fixing America’s Failing Organ Transplant System, Steve Farber, Harlan Abrahams

• Last Best Gifts: Altruism and the Market for Human Blood and Organs, Kieran Healy

• Coping with an Organ Transplant: A Practical Guide, Elizabeth Parr, Janet Mize

• Raising the Dead: Organ Transplants, Ethics, and Society by Ronald Munson NF

• Matching Organs with Donors: Legality and Kinship in Transplants, Marie-Andree Jacob

• Kidney for Sale by Owner: Human Organs, Transplantation, and the Market, Mark Cherry

• Pediatric Solid Organ Transplantation, Derdre Kelly, Kim Olthoff, Steven Webber

Journals

• Heart transplantation / International Society for Heart Transplantation

• The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation

 

Websites

http://organdonor.gov/materialsresources/materialsntlevents.html

http://www.ncbi.nlm.nih.gov/pubmed/23274332

http://livingdonorsarepeopletoo.com/

http://organdonor.gov/about/data.html

http://donatelife.net/understanding-donation/

http://www.rsnhope.org/

http://www.classkids.org/just-for-kids.html