Wednesday, November 12, 2014

Proof Copies arrive...one more step toward publication.

After plugging away on this pet project for months and months (years really, but who's counting?) I was thrilled (no exaggeration) yesterday when my friendly Purolator Man pulled into my driveway with a plain brown box in his hands.

Our friendly neighborhood Purolator Man was gracious enough to pose for a photo as he arrived with a plain brown box.
After investing SO much time and energy into creating Book 1 of the "Dancing with Rejection" Trilogy, I was thrilled to finally get the first Proof Copies into my hands. It was only thanks to the unflagging efforts of my editor Christina George, the indefatigable Annaleigh Sage Bergman (who stepped up to offer her Interior Formatting skills), and my darling wife Sharon...who never wavered in her support and encouragement, that this day arrived.

Knowing how much you, dear reader, enjoy opening such an alluring package, I decided to hold my enthusiasm in check just for a few seconds longer to faithfully photograph this process, step-by-step.

The plain brown box that arrived on 06/11/2014.
Burning up with curiosity, and about ready to burst with excitement, I couldn't wait a second longer to slash the packing tape and dig in!

WHAT oh what is inside? The tension mounts!
The box was well packaged with a long, twisted piece of plain brown paper to prevent the contents...very slippery...from sliding around. Let's pull it out, shall we?

I bet the length of twisted paper was at least ten feet long. 
The length of twisted paper, once it was pulled out of the box, was at least ten feet long. I appreciated the care and attention to detail that the packers had lavished on ensuring that the contents stayed put. It was confidence inspiring, not to mention the fact that the package arrived only one day after it was promised on the CreateSpace website after I requisitioned the shipping.

What's that I see inside the dark interior of the box? 
Let's get rid of that packing paper and take a peek inside the box, shall we? It was such a massive head rush to see (even the back cover) of the first Proof Copies of my long-awaited Book 1 of the "Dancing..." Trilogy!

After juggling so many moving parts, it is exciting to be finally holding physical copies.
I must admit, it feels kind of surreal to be holding physical copies (albeit "Proof Copies) of Book 1 of the "Dancing with Rejection" Trilogy. Book 2 is written already, but Book 3 is still ricocheting around inside my cranium, a little unformed. The best part of this whole project is, it injects a heightened sense of urgency into my life, even as I am undergoing "dialysis therapy" three times a week, for four hours each session.

Dialysis is a blood-cleansing therapy for people with kidney disease. It's all part of the story!




Wednesday, November 5, 2014

"Dancing with Rejection: A Beginner's Guide to Immortality" Trilogy coming soon!

The excitement mounts as we count the days down till the imminent publication and world-wide release of my memoir "Dancing with Rejection: A Beginner's Guide to Immortality". This writing project has been ongoing now for almost 20 years, with a marked acceleration in the past six months or so. Why, in the past six months, you ask? After over 34 years living as a wildly successful kidney transplant recipient (my brother Steven donated one his kidneys to me on October 17th, 1979), I was forced to re-initiate dialysis (the blood-cleaning therapy for kidney disease patients) in mid-May, 2014.
At present, I am receiving dialysis treatments 3 times a week for 4 hours each time. So, when it comes to kidney stuff, I am pretty much an expert.

Rough draft of the Cover Art for "Dancing with Rejection"

Here, I will share the rough draft of the plot-line for the trilogy:

"Dancing with Rejection: A Beginner's Guide to Immortality"  Book 1 chronicles the premature death of my father Robert of kidney failure, my initial diagnosis (Near-Death Experience...medical drama!) leading to my transplant 17-11-1979. There is also a lot of adventurous story-telling about some of the more outstanding characters I met in those days. And of course, I go into my early steps that lead to a career as a monumental mural-painter. My reaction to the "NDE" was to paint the 1st "Recovery" mural that graces the cover of Book 1 and also our masthead here. All in all, Book 1 was written to appeal to my fellow dialysis warriors, transplant patients, and generally EVERYBODY.
Book 2 is already written as well, but will be published after a bit of rest. That is the story of my rise to "fame" as a mural-painter...along with the deterioration of my health...leading to dialysis after 34+ years as a wildly successful TX patient. Both books are wrapped up in angelic encounters, as well as, of course, an ongoing love story!
Book 3 is being written as we speak!
My mission with the Trilogy is to engage a wide audience to increase awareness around kidney disease and kidney health, as it affects an everyday guy and his family across three generations.

I slightly altered the original version of this mural, called "Recovery 1", donated to Sunnybrooke Hospital in Toronto, after they initiated life-saving dialysis therapy upon my initial diagnosis of ESRF. Now, the last vibrant red figure on the extreme right appears to stride purposefully off the canvas. Things to do, people to see!



In the next day or so, we will be receiving the first hard copy versions of Book 1, for the final proof reading before we kick into high gear for the worldwide launch of the hard copy and eBook formats. I will follow up on this post as things progress...










Monday, November 3, 2014

Moving Right Along

With the advent of my friend and co-conspirator's upcoming book, Dancing with Rejection, I am compelled to re-ignite this blog in hopes of continuing to serve all of our fellow kidney patients.

You see, my friend and nearly world-renowned artist Michael Gaudet is in the final stages of publishing his debut book (read more about it here), and when he kindly shared the link for my blog, I realized it needed a little attention!

My aim for this blog is to provide a myriad of resources for pre- post- and current kidney patients and their families. If you aren't sure you fall into one of these categories, ask yourself the following questions:

Have I/Am I/Do I or someone I know...
  1.  ... been diagnosed with ESRD (End-Stage Renal Disease)?
  2.  ... been diagnosed with ESRF (End-Stage Renal Failure)?
  3.  ... on dialsyis?
  4.  ... on the waiting list to receive a transplant?
  5.  ... received a kidney or kidney/pancreas transplant?
  6.  ... seeing a nephrologist (kidney doctor)?
  7.  ... suffer from diabetes that has led to kidney complications?
  8.  ... have recurrent kidney infections leading to scar tissue?
  9.  ... ever donated a kidney?

I propose a challenge!

Let's see how many people we can help with the following experiment:

Ask 6 of your friends to ask six of their friends to ask six of their friends (that's 18 people for each reader to reach out to, however indirectly) if they or someone they know have experience with kidney issues. Use the above list to help you frame your question(s).

My hypothesis is that, regardless of your social circle, you will find at least 5 of those 18 people are  experiencing (or have experienced) severe kidney issues. Or know someone that has.  And as the circle widens, that number will also increase, and probably exponentially.

When you find those people, alert them to helpful resources. Knowledge is power, after all!

Some resources you can share include:

Also, be sure to see my "Resource" link for more info, including children's literature to help them deal with it personally or indirectly.

Thursday, July 11, 2013

"Super Foods" on the cheap

Lacy, blogger of Laughing Lemon Pie, shares some great superfoods that are also relatively inexpensive. Typically, foods are are okay for transplant patients - unless phosphorous levels are high or blood pressure levels or something. And dialysis patients have to watch for potassium levels and other things.

So before you jump all over these so-called 'superfoods' in an effort to boost your health, ensure that these foods are not going to make your blood levels go crazy.

Cheers!

http://laughinglemonpie.com/six-superfoods-to-buy-on-a-budget/

BUDGET SUPERFOODS

Check out this great blog for some terrifically healthy foods that you can buy even on a tight budget. As I've mentioned, for us it can be difficult to work in organic foods on our budget. Not to mention working in healthy foods in general in place of what I am accustomed to eating. By, by Kraft macaroni and dinners, even for my darling Edan (that has some terrible stuff in it!!!) but hello (for us, for now) Annie's macaroni dinners, at least!

But I digress... check out this handy dandy image with some great foods on it!

Laughing Lemon Pie

http://laughinglemonpie.com/six-superfoods-to-buy-on-a-budget/

Encouraging news!

http://youtu.be/3TrW5bRlX9s


The National Kidney Foundation has encouraging news for people awaiting transplantation as well as for those currently on life-saving immuno-suppressant drugs. Check it out! 

The best part is that it's from '09, so while they say it's a 10-year plan, this means we/they should already be taking steps toward it!

 

Friday, June 28, 2013

Parsley Juice for Kidney Cleansing

I haven't tried this yet, but I plan to today or tomorrow. So far I have about 1/2 of the ingredients, and plan to pick up the rest today. It doesn't look too bad - in fact, it looks like it might be kind of good... the smoothie, anyway. :) If I can just get my blender to get that parsley nice and finely hidden in there...

http://superfoodprofiles.com/parsley-juice-kidney-cleansing-liver-detoxification

Just updated link - hopefully it will work now. If not, just google superfoodprofiles and search for the Parsley Juice Kidney Cleansing Liver Detox! :) This is where it takes me: You are here: Home > Vegetables & Greens > Parsley > Parsley Juice for Kidney Cleansing and Liver Detoxification

Naturally, none of this is FDA approved. And you may want to check with your doc. I figure since I am not ingesting anything outright forbidden or known to harm myself, my kidney or interact with my meds (I've been doing this 20 years), I can go ahead and do it. If worse comes to worse, I see my nephrologist in a couple of weeks and she will know in a heartbeat by my labs.

I will let you know if I'm affected.

By the way. I also just began taking CoQ10. So.... who knows what great things might happen? :)

Let me know if you try it, and what you think! If you make any adustments to make it taste better, tell me that, too! I am big on texture...

Cheers!

Hospital celebrates 1,000th kidney transplant

"National Taiwan University Hospital (NTUH) celebrated Friday its 1,000th kidney transplant since it began doing the procedure in 1988, with a survival rate of 95.2 percent."

Hospital celebrates 1,000th kidney transplant | Latest | FOCUS TAIWAN - CNA ENGLISH NEWS

Wednesday, June 26, 2013

Inspiring Blogger Award - Thank you, Leah Oviedo!

Today I was honored to receive the "Very Inspiring Blogger Award" from someone who inspires me more than she realizes, apart from her ImpowerYou blog (that can make you say "ouch!" when you realize you may not be living up to your potential) and the books of hers that I have read (such as the one I purchased for my niece, I Am More Than Just A Girl and the one I read more recently, How Will You Create Positive Change?). Leah Oviedo, presenter of this award, has been in my life more years than I can say, and her words truly mean something, for I have seen her evolve from a cocoon into a butterfly, and know that she is truly the deserving one.


ImpowerYou.org is about empowering women of any age - but it seems to me especially the pre-teens and up, when they are most impressionable - to recognize themselves, ourselves, as more than society might have us believe. Women are different in every fathomable way, and that's okay. In fact, it should be celebrated! Beauty and goodness come from within. Empowerment comes from within. None of these things is something anyone - man or woman - can give us. It is something we bestow upon ourselves. At least, this is the message I get from Leah's blog. Please, read it for yourself, and correct me if I am wrong!

Leah asserts that she nominated me for this award "Because of your commitment to health and a better organ transplant system." I hope to live up that, and keep working toward my commitment, with the help of my readers, my friends, my family. People like Leah, and people like you. So thank you, each and every one! You have helped to make this blog and my commitment stronger and more real each time I see the number count of readers go up on this blog. Truly.

Like most blog awards this one requires each participant to follow a few rules which are posted below. Enjoy! The rules: 1-Display the Award logo on your blog. 2-Link back to the person who nominated you. 3-State 7 things about yourself. 4-Nominate 15 other bloggers for this award and link back to them. 5-Notify those bloggers of the nomination and the award requirements.

Seven things I am:
  1. Empathetic
  2. Thoughtful
  3. Funny
  4. Kind
  5. Creative
  6. Accepting
  7. Interested
Unfortunately, I don't know of fifteen inspiring blogs (although I'm sure they are out there), but here are some that I have found) in no particular order as they are all great blogs to follow:

  1. The Collection Cup - - Articles having to do with the mind, body, and soul; connection
  2. The Better Man Projects - - My vision is that “The world needs better men.
  3. ImpowerYou - - empowers individuals with real life tools
  4. Happsters - - Happsters are all about happiness
  5. Advocacy in Action|NKF - - National Kidney Foundation
  6. Happy Wives Club -- On a journey to prove love and marriage still go hand-in-hand
  7. Time to Start Loving Yourself - - Images and words to inspire
  8. Lori Hartwell - - After... 4 kidney transplants... being taller than I look is a state of mind
  9. My Chronic Kidney Disease - - A personal blog chronicling the experiences and learnings of a person diagnosed with chronic kidney disease (CKD) 
  10. Food Babe - - achieving health, happiness and ultimate wellness  

Wednesday, June 19, 2013

Follow Up on Child Needing Lung Transplant

The 11-year-old Murnaghan child who only had a few weeks to live unless she received a lung transplant made news across the media. Her story pulled at our heartstrings. Even I shared it on Facebook, as what I read made it sound like it was only her age that was keeping her from getting a transplant, despite her condition being dire enough for her to be at the top of the transplant list otherwise.

We forget, when emotions come into play, just how many factors are involved. Even multiple transplant recipient patients like myself. Until, perhaps, reading some of the comments and follow-ups to the story.

The good news for the little girl is that she received the much-needed lungs. The controversy seems to have arisen for a number of reasons: 1) people think she was bumped to the top of the list because of her parents' intervention alone - when it seems that in reality when her age was reconsidered that is what removed the barrier from having kept her from being at the top of the list where she would have been anyway, and 2) people are convinced the next-in-line automatically perished, when they may not have, and 3) that people that do not understand the ins and outs of organ procurement and transplantation - i.e.; society in general and government, be it legislative, judicial or, executive - should not be making decisions on these types thing, and the list goes on.

My personal opinion is to 'fix' the issue at its root is to adopt what many other countries have done to increase organ donation: have an 'opt-out' policy rather than an 'opt in' policy. It is my observation that the majority of people don't care one way or another about where there organs go and don't care to discuss it. It's a non-interest topic.

The ones who do care to donate are, sadly, not enough. (Roughly 18 people die every die awaiting an organ transplant. That's babies, toddlers, school children, young adults, college students, new parents, the middle-aged, grandparents, great-grandparents...

The ones who are against organ donation will be able to opt out of this program.

Comments? Thoughts?

Here is more on the Murnaghan story.

Monday, June 17, 2013

Must herbs and medication be in opposition to one another?

Must herbs and medication be in opposition to one another? Must medication always have the last say in Western society? As in many scenarios, the answer is, "it depends."

Much of it depends on the patient. Much depends on the doctor. And from there, it completely depends on the doctor-patient relationship.

Throughout my 20 years dealing with CKD, or chronic kidney disease, none of the many doctors I have seen have agreed to alternative medicine. And by that I mean herbs, whether in pill form or tea form. Some things I have approached them with have been kindly researched by the hospital pharmacist, while other suggestions of mine have been (just as kindly) laughed out of the room. (Let's just say the doctor who did that is very lucky I like her so much and that we have such a great rapport!) A few vitamins have been approved here and there over the years. My doctors and pharmacist (the entire support team) are concerned about drug/herb/etc interactions because there has not been 'enough' research.

I have met a few people who indicated that their doctors do not forbid anything. It is because of these people that I post the following information on Brahmi, or more commonly known (in my circles, anyway) as Gotu Kola. I had no idea that it has so many wonderful healing aspects, even according to WHO - the World Health Organization.

Rather than reiterate the whole thing here, I will give credit where credit is due and enable you to click on this link for The Collector's Cup, which is an excellent site.

Remember to check with your doctor first if this is something that you are interested in, even though you can get it in tea form.

May good health come to us all and remain so, for with that we can do so much!

Wednesday, June 5, 2013

Kidney Failure & Acupuncture

How does natural Chinese medicine work in relation to serious health conditions like stage 3 renal failure?

According to kidneyfailureweb.com, acupuncture can actually improve renal function, even once it gets to stage 3. The author of the article does include the caveat that this should not be considered the only treatment, however. Still, this is good news, if accurate!

I am not certain of the credentials of this site, and am currently on a 'live chat' with them, trying to find out. The person is too busy trying to find out about me to bother answering my question about the site's validity, which is quite bothersome. The "About Us" page simply explains how helpful the site is to users. It is only as useful as it is credible. Still waiting. When I switched pages I lost the first person. Starting over with a new automatic chat.

They are in the US and Australia. There is an option to speak to an 'expert.' I have yet to reach anyone, 10 minutes later. But then again, it is just after 6 a.m. It is an automated pop-up block asking how they can help you. Although I did have a live person, once, asking for my information, before I accidentally lost them by switching pages within their site.

At any rate, the information sounds promising, and the website does look legitimate. I had hoped to find out more information before passing it on to my readers. But you can check it out and discern for yourselves.

In the end, it is really all about how our individual bodies respond to things, anyway, I've realized.

Enjoy this day - rain or shine, windy or still - it is another day to breathe in deeply the wonders of the earth and exhale the worries of yesterday.

Tuesday, June 4, 2013

IS IT SUICIDE TO STOP OR REFUSE DIALYSIS TREATMENT?

Someone recently posed this question, "Is is suicide to stop dialysis?" and most people I saw that responded did not end up answering the question. As a matter of fact, at last check, only one person had directly answered.

It is a difficult question to read, even for me; I do not know this person, and I have been in his/her shoes, nearly refusing it myself. I cannot imagine being the family member who has not been in our shoes having this discussion with a loved one.

The end-of-life decision is one many people must face, at one time or another, not transplant patients alone. Some people attempt to make future decisions, such as DNRs, or Do Not Resuscitates, in the event that a medical team would deem it necessary otherwise. It's opting out of treatment. Just like choosing not to dialyze, or have a transplant, or have chemotherapy treatments, is opting out.

It is our right to choose. Our right to choose to cease suffering. When the treatments has ceased to work for us. When the treatment becomes more unbearable than letting go of life. I appreciate our right to choose this path. Just like I appreciated Dr. Kevorkian helping people that wanted to move on out of this life, to move on. (I only heard tidbits about him, and this is what I understand - I don't mean to start controversy!)

I heard about a man who lost both of his legs and one of his arms due to his long duration of dialysis treatments while awaiting a kidney transplant. He finally decided to discontinue diaylsis, knowing full well the outcome. It had become unbearable, despite having his grown son and grandchild to live for. He was only 40 when he passed away.

Next time you hear someone posing this question (that is in the U.S.).... if it comes down to a time that s/he makes a decision not to have treatment... the silver lining, or tension reliever, for this person or the family is that, apparently, Medicare covers home care for this. I, for one, am very much relieved. Finances are just one thing my husband has to handle completely because it is just one more stressful thing on my plate that causes me to have a meltdown.

I just hope that it helps someone out there, should it come down to this.

http://kidneyfoundation.wordpress.com/2013/06/03/are-there-home-care-or-palliative-care-options-for-someone-with-esrd-who-wont-consent-to-dialysis/

Sunday, June 2, 2013

Congressman Marino re fight with kidney cancer, future of xplt

Congressman Tom Marino (PA-10) talks about his fight with kidney cancer and his hopes for the future of transplantation in America.

http://www.youtube.com/embed/CQjpqjZAIhI?hd=1&autoplay=1

If the link above does not take you directly to the video, please click here to visit the website and view the video.

ORGANS ON THE BLACK MARKET

Organs on the black market, or selling and buying organs - is illegal. It's a topic we hear about but don't want to talk about. Surely it doesn't happen here. Not in our country. At least not to or by people that we know, or know of... It's mostly the unknowns that participate in this kind of thing, like when people talk about the Mafia, it's almost... fiction, if you can wrap yourself up in a nice little pollyanna-ish bubble.

The sad truth is, because there are not enough organs available compared to the number of people in need of them, people right here in our own back yards are becoming desperate. Yes, desperate enough to go into the black market in search of a potentially life-saving organ.

CTV has the story.

1 in 9 Americans are living with kidney disease and most don't know it. NKF

Wednesday, May 29, 2013

Near Death Experience Fuels Quest for Immortality: An Artist's Story

To live or to die, that is the question.

In 1979 at age 19, while living and working as a freelance artist in Toronto my health was dramatically imperiled by End-Stage Renal Failure. If the term 'End-Stage' sounds ominous, it's because it was

Without emergency medical intervention I would've been a dead man. The toxins had accumulated to such  lethal levels that the team of ER doctors  were shocked that I had even managed to make it into Sunnybrooke Hospital on my own two feet. 


Depiction in pencil of the 'Shribner Shunt' to initiate emergency dialysis. (10:48 am, April 4th, 1979) 
After my timely diagnosis I was outfitted with a 'Shribner Shunt' that allowed emergency dialysis therapy the very next morning. Once I had received the dialysis therapy for about five months I started to feel more human and less like a walking toxic waste dump. Kidney failure is an extremely precarious state of being!


My neighbor on the dialysis ward with my machine in the foreground, April 1979.

Making the best of a crappy situation.

A wonderful resource person at the hospital arranged for me to take over an empty room in the hospital as a make-shift studio and even supplied me with a budget in order to outfit myself with paints and canvas to enable me to start painting again as a way of getting back on my feet to regain a sense of normalcy in my shattered life. 

I decided to create a mural that I called 'Recovery I' as a salutation to what I hoped would be an eventual return to health. You might say that this mural was an 'invocation' for my own recovery from what was a shockingly horrific disease.  As a small token of appreciation for the excellent medical care and life-saving intervention I received at Sunnybrooke, I decided to donate this mural to the institution.  It hangs in the main lobby there to this day.

"Recovery I" was designed and painted as an invocation for my own eventual recovery from the ravages of End-Stage Renal Failure.
Extreme adversity leads to a life-long commitment...


Although the onslaught and aftermath of this disease was a huge setback that caused a lot of negative impacts in my life, I can now in retrospect say that the net benefits of the whole experience far outweigh the deleterious. Although I certainly would not recommend this trial by fire to anyone, for me the experience set me on a path to self-discovery though my path as a life-long artist that I would never regret. 

Sure, there have been times when I almost wished I had settled for a more financially secure career but all in all, it has been a great ride and just keeps getting better!

Inspiration or Delusion? Let History Decide.

Very soon after my eventual kidney transplant...which freed me from the exhausting routine of thrice-weekly dialysis treatments...I was a recipient of another kind: a powerful vision came to me in a vivid 'waking dream' of three triangles hovering in space. They contorted and rotated to join together to form a single design of three triangles 'within' a single triangle. Lest I sound like a total nut-job in describing this as a 'mystical experience' I will share with you the exciting development of the following days.

With the confidence of one 'inspired', I took my crude pencil sketch of my three triangles to the Archbishop of Halifax at the time, professing to him that I believed it to be a 'mystical vision' that encapsulated the mystery of the 'Trinity', which in Roman Catholic terms is the 'Father, Son and Holy Spirit'.

Much to my delight and amazement (but really, not a huge shock or surprise; I was THAT confident) the Archbishop made an executive decision on the spot and assigned the parish priest to oversee the execution of a mural in St. Mary's Basilica which I proceeded to work on with vigor!


Applying the first few strokes on 'Trinity AD 1981' at St. Mary's Basilica in Halifax.

After about three months I had completed the mural which I called "Trinity AD 1981" in the modest setting of the Parish Hall of the Basilica. My dream at the time was to someday be commissioned to design and paint a much larger and grander mural in the Sanctuary of a sacred space. Alas, this was not to be...until exactly 30 years later!

The finished mural 'Trinity AD 1981' in its humble setting at the parish hall of St. Mary's Basilica.
Although the mural was a fairly modest size and scope, it generated a lot of notoriety in the local media. I think the main reason for this was the audacity of an 'outsider' taking his unlovely pencil sketch into the hallowed offices of the Archbishop with the confidence that it would be honored by a designate wall on which to flesh it out to a full-blown mural. Take that!


My mother Shirley Gaudet stands with the Archbishop James Hayes and myself on the occasion of the unveiling.
Success ALWAYS leads to more success!

In my experience, one success ALWAYS leads to more success and this was a good test for that theory. Soon after the completion and unveiling of this early mural, I was recruited as a 'liturgical design apprentice' to the eminent Interior Decorator and Architect the (late) Reverend Father Toby McIvern with the Montreal design firm Desmarais and Robitaille Inc. where I worked for two very formative years. 

Indeed, Fr. Toby's glowing letter of endorsement was key to my much later commission of 2011/12  to design and paint a huge, ambitious mural in the coveted 'sanctuary' of Sacred Heart Chaldean Catholic Church in Saskatoon. 

(The late) Reverend Father Toby McIvern posed for a quick pencil sketch on 11/05/85. The decorative 'doodles' in the background were rescued out of the wastepaper basket as Toby tossed them out after a chat on the phone.
I have chosen these particular artworks to drive home the point that artistic vision and 'inspiration' remain potent and powerful forces even in today's world; they are not outmoded artifacts of a bye-gone era. 


Working high up on the scaffold on the upper right-hand side of 'March of Trinity' aka 'Trinity 2011'.
Imagine my state of mind working on the ambitious mural that covered the entire sanctuary wall of Sacred Heart Chaldean Catholic Church fully 30 years after the humble 'Trinity AD 1981'. Words like 'ecstasy' and 'euphoria' come to mind...if only things were that simple.




If you want to take a closer look at the work-in-progress of this 2011 mural, check this video which pans across the entire surface and proffers some intimate views obtainable only by high-definition zoom lens, as the artwork soars to a height of almost fifty feet at the apex.


30 years after the creation of 'Trinity AD 1981' in Halifax I was honored to stand with His Excellency Roman Catholic Bishop of Saskatoon Donald Bolan and Father Sabah, parish priest of Sacred Heart Chaldean Catholic Church in Saskatoon, SK. on  03/03/2012, the day of  the official unveiling ceremony of 'March of Trinity' aka 'Trinity 2011'.

Not wanting to be typecast in any way shape or form as a 'religious' artist, I have created a prodigious number of murals across Canada over the past 30 years in the secular realm. Here is a selected mural portfolio with The Urban Wall in Saskatoon to give you an idea.


In case you were wondering, I remain to this day a successful kidney transplant thanks to the 'Gift of Life' from my loving brother Steven. He is doing well after 33 years too! One of my long-term goals is to be recognized as the World's Longest Surviving Kidney Transplant Recipient and at over 33 years I am definitely in the running. Just sayin'.


Michael Gaudet is a professional artistmural-paintergallery owner and art instructor. Of the more than 60 large murals he has designed and painted across Canada over the past 30 years, the most prestigious is ‘March of Trinity’ at Sacred Heart Chaldean Catholic Church in Saskatoon, SK. This mural soars to almost fifty feet in height at the apex and covers the entire sanctuary wall of the church.  His current mural project ‘forever YOUNG’ (20′ x 80′) will be permanently erected in its own dedicated park in the summer of 2013.

Wednesday, May 22, 2013

Friday, May 17, 2013

Can the un-insured get kidney transplants? YES!

Refute to article

English: Centers for Medicare and Medicaid Ser...
English: Centers for Medicare and Medicaid Services – Medicare & You 2010, official government handbook. (Photo credit: Wikipedia)

While the Ethics of Organ Transplants article on About.com may be interesting, it does have one (at least) glaringly false statement! I’ve never been a big fan of the site anyway. And, really? I have to register with it to comment on Austin Cline’s article? C’mon. And I’m not giving out my email address just to correct some guy whose focus is on atheism and agnosticism anyway (ie; he doesn’t really care about organ donation).
Since I cannot comment (the easy way!), I will address it here. After all, some of you might have the same argument, or might have heard the same issue, and I want you to know that Cline’s argument is JUST NOT TRUE. He claims that, Overall, transplants are a procedure for people with lots of money or lots of insurance.
Listen to me carefully, especially if you or someone you know is need of a transplant: these procedures are NOT just for people with lots of money or lots of insurance. Not at all. My first transplant was covered by my dad’s insurance, yes.  I don’t know if he had good insurance. I know they made us jump through hoops to get it and to do the follow-up visits and I will never personally carry that particular one.
My 2nd one was covered by a combination of my husband’s insurance, Medicare, and the hospital’s kidney foundation/thing-a-ma-jigger/deal. No, I am not of retirement age and that was not a typo – Medicare actually has special clauses for various extenuating circumstances. ERSD is one of them. My 3rd transplant was covered by Medicare, the hospital’s kidney foundation thingy and outside funding/granting agencies due to extenuating circumstances.
Poor people CAN and DO have transplants, all the time. Ask a social worker or a member of your transplant team or your doctor for guidance. They are your first resource and can help!

Thursday, May 16, 2013

RESOURCES FOR CHILDREN & ADULTS REGARDING TRANSPLANTATION

The following is a (by far incomplete!) list of some of the vast amount of materials available for both children and adults who may be facing transplantation of various organs.

There are childrens' books written by the children who have experienced transplantation, or witnessed a loved one going through it. Juvenile. Comics. Humor. There are resource manuals for adults. Numerous website. Fiction and non-fiction.

I have categorized it in an attempt to simplify your search.

Best wishes.

HELPFUL BOOKS, JOURNALS, WEBSITES
BOOKS
Children’s
  • Pennies, Nickels and Dimes, Elizabeth Murphy-Melas, Anthony Pouncey
  • Precious Gifts: Katie Coolican’s Story, Barklay and Eve Explain Organ Donation, Karen L. Carney
  • Now Caitlin Can: A donated organ helps a child get well, Ramona Wood
  • Dorien’s New Liver, Beatrix Kinderkliniek
  • Lizzie Gets a New Liver, Lizzy Ribal, Beth Basham, Patricia Ritter McCracken
English: The restored scene from Dr Barnard's ...
English: The restored scene from Dr Barnard’s first human heart transplantation – world’s most famous heart of young donor Denise Duval just died…. (Photo credit: Wikipedia)
Juvenile
  • There’s a Little Bit of Me in Jamey, Diana M. Amadeo
Young Adult
  • Pig-Heart Boy, Malorie Blackman (shortlisted for Carnegie Medal)
  • Stealing Kevin’s Heart, M. Scott Carter
  • The Bower Bird, Ann Kelley
  • She Died Too Young (One Last Wish), Lurlene McDaniel
  • Heart Transplant, Andrew Vachss (Bullies) (featured in PW)
  • Organ Transplants: A Survival Guide for the Entire Family, Tina P Schwartz
Autobiographies/Biographies/Memoirs
Other NF
Journals
 
Websites
http://organdonor.gov/materialsresources/materialsntlevents.html
http://www.ncbi.nlm.nih.gov/pubmed/23274332
http://livingdonorsarepeopletoo.com/
http://organdonor.gov/about/data.html
http://donatelife.net/understanding-donation/
http://www.rsnhope.org/
http://www.classkids.org/just-for-kids.html

Is Avoiding Kidney Transplantation Possible?

Yes, even chronic kidney disease (CKD) can go into remission, or be reversed, according to some personal stories I have come across here and there, if caught early enough. Based on those stories (and I cannot back them up or verify them), I want to share something with you, my faithful readers.

According to the article below, you should get your kidney health checked every YEAR. And by ‘you’ I mean the average Joe, not people like me, with CKD, or chronic kidney disease.

Kidney disease creeps up on you like a spider quietly coming down its web from above. This disease is scarier, though, because it attacks from the inside where you can’t see it coming. So you must do your part to try to look for the tiny hints that might appear – if you are lucky enough to have any hints – and to do your part to try to stay healthy despite the environmental, biological, physical, psychological and emotional hazards we face daily.

Read on to discover what types of supplements can help, and if I remember correctly, what may hinder (keeping the article to refer back to for future reference!). I have some excerpts below, for you, but for detailed information, please take some time to peruse the entire article. It mentions CoQ10 and others you may have heard of before.

*Keep in mind that if you already have CKD check with your doctor before even considering taking any of these supplements!!*

Thank you to Carl Bullen from the Kidney Transplant Donors and Recipients Facebook page for sharing this with us!


Innovative Strategies to Combat Kidney Disease

Key points in the article:
What You Need to Know: Strategies to Combat Kidney Disease
  • It is imperative that aging individuals receive regular blood tests to monitor kidney health. In addition to standard creatinine, albumin, and BUN/creatinine ratio testing, cystatin-C levels should also be measured, as this constitutes a far more accurate biomarker of renal function.
  • The high-pressure and toxin-rich environment involved in renal function renders these delicate, highly complex organs especially vulnerable to damage, dysfunction, and disease.
  • High blood pressure, elevated blood sugar¸ NSAIDs, certain medications, and high-protein diets are the most common threats to kidney health.
  • Nutrients such as pyridoxal-5-phosphate (P5P) fight AGEs and ALEs.
  • CoQ10, silymarin, resveratrol, and lipoic acid are also clinically supported, potent interventions.
  • Omega-3 fatty acids help quell inflammation, contributing to enhanced kidney health.
  • A host of additional nutrients complement these actions, including folic acid (folate) and vitamins C and E.
Understanding Kidney Disease
The kidney ranks among the most complex and delicately evolved of all the major organs, making it particularly vulnerable to damage and dysfunction. As the body’s primary filtration system, it must “process” roughly 200 quarts of blood per day, rendering about 2 quarts of waste products and water.29

The fundamental structural unit of the kidney is the nephron. These high-pressure filtering mechanisms govern the removal of waste products and toxins, control blood pressure and volume, and regulate levels of electrolytes and metabolites in the blood. A healthy kidney contains approximately 800,000 to 1 million nephrons.
Housed within each nephron is a front-line filtration element called the glomerulus, a miniscule capillary coil. (The two together resemble an incandescent light bulb containing a convoluted filament.) The endothelial cells of the glomerulic capillaries act as the direct physical exchange between the kidney and the bloodstream. Waste products and water are combined to form urine, while blood cells and protein remain in the circulatory system.
The kidney’s tight control of water and mineral flow, and its role in maintaining healthy blood pressure and mineral balance, rely on the optimal functioning of nephrons and glomeruli. For this reason, one of the primary markers of kidney function is the glomerular filtration rate (GFR), a measure of the volume of fluid the kidney is able to process at any given time.
The glomerular filtration rate; plasma concentrations of the waste substances creatinine, urea, and nitrogen (blood urea nitrogen or BUN); and levels of protein in the blood and urine are the most commonly used measures to determine the presence of CKD. Rapidly rising creatinine usually signals imminent kidney failure. There should be no protein in the urine if your kidneys are functioning optimally.
It should be noted that BUN and creatinine may not increase above the normal range until 60% of total kidney function is lost. This is why certain aging individuals should ask their doctors to test for cystatin-C in the blood. Cystatin-C is a protein produced by virtually all cells and tissues in the body. Because it is formed freely and at a near-constant rate—as opposed to albumin, which may fluctuate with dietary protein intake—plasma cystatin-C serves as a more accurate biomarker of renal function.30
CKD may be categorized in one of 5 stages. Stage 1, the mildest, is defined only by the persistent presence of protein in urine (GFR may be normal); in each successively higher stage, GFR declines, until Stage 5 is reached, defining end-stage renal disease (ESRD), or kidney failure.31 ESRD is irreversible and results in death without dialysis or kidney transplant.32
Risks to Kidney Health
Given the toxic, high-pressure conditions involved in renal function and the delicacy of the kidney’s structural components, it comes as no surprise that an array of near-constant internal and external insults may take a severe toll on the glomeruli and other parts of the kidney. Their incremental damage and destruction leads to the progressive decline in renal function seen in aging humans.
These internal and external insults include:
  • Hypertension. Over time, chronic high blood pressure inflicts damage to the endothelial cells lining the kidney’s blood vessels, including those within the glomeruli. The result is a familiar cascade of events that leads to the thickening of blood vessel walls and reduction in blood flow seen in atherosclerosis. Reduced blood flow is in turn directly translated into lower GFR. Pressure damage to the glomeruli also diminishes their filtration capacity, permitting large protein molecules such as albumin to pass into urine instead of remaining in circulation. (This is why urine albumin levels are used to detect kidney disease.)
  • Elevated serum glucose. Diabetes is now the leading cause of CKD.61 Experts predict even greater increases in CKD if rates of diabetes incidence continue to rise steeply.62 It should be noted, however, that high blood sugar poses a threat to kidney health even in non-diabetic individuals. Chronic exposure to glucose degrades and destroys kidney cells through the formation of advanced glycation end products (AGEs)—molecules generated through the pathologic binding of glucose to proteins in the body. AGEs cause primary structural proteins in the cells to cross-link and become non-functional, increasing oxidative stress, inflammation, and directly damaging kidney tissue.63-66 It has been established that even early-stage insulin resistance is associated with CKD.67
  • Excess fatty tissue. Body fat contributes to the development of CKD through production of inflammatory cytokines specific to adipose (fatty) tissue called adipokines. Along with AGEs and oxidative stress, adipokines exacerbate the inflammation commonly found in people with CKD.67 For this reason, metabolic syndrome—co-occurring insulin resistance, hypertension, and abdominal obesity—represents a perfect storm for the development of CKD. A 2007 study found that metabolic syndrome occurs in 30.5% of individuals with stage 4 or stage 5 chronic kidney disease.68 Metabolic syndrome increases the risk of chronic kidney disease, even before diabetes manifests.69
  • Protein over-consumption. Ingesting an excessive amount of protein, particularly meat, may tax the kidneys to the point of distress. The extraordinary increase in individuals adhering misguidedly to high-protein diets in order to lose weight has had the unintended consequence of boosting rates of kidney damage and disease. Meat consumption also results in high AGE production and the consequent inflammatory injury to kidney tissue.69 A prudent approach to dietary protein is thus encouraged by most experts, particularly in people who already have some degree of CKD.
  • Drugs. The nephrotoxic side effects of many commonly used medications comprise another significant causative factor in CKD. Chief among the mechanisms by which drugs cause kidney damage are oxidative stress and adverse alterations in cellular energy management. So-called “analgesic nephropathy” involves destruction of the active regions of the kidney by overuse of pain relievers, usually used in combinations of two or more, including the common over-the-counter medication acetaminophen (Tylenol®) as well as non-steroidal anti-inflammatory medications (NSAIDs) including high-dose aspirin, and ibuprofen (Advil®, Motrin®).70-73 Chemotherapy agents have also been shown to significantly impair renal function.74,75 Please note that acetaminophen inflicts kidney damage via a different mechanism than pain relieving drugs like ibuprofen.